OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Groups

 

Latest Activity

Teresa Ann Smith replied to Pat Polinski's discussion Older people living with O.I.
"Hi Darla,   So good to hear from you too!  Awh!  which is your last rescue pet?  I love animals too, I had 5 dogs at one time 4 Yorkshire terriers and a black Labrador!  Also had two cats way back.  I have a parrot…"
5 hours ago
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Teresa, I love talking to you! We got a rescue pet and I have been busy taking care of it.  I am an animal lover.  We have 4 cats and a chihuahua and not to mention my sons reptiles.  I am having a flair-up of tennis elbow.…"
9 hours ago
Teresa Ann Smith replied to Pat Polinski's discussion Older people living with O.I.
"Hi Pat,Sorry to hear you had a mini stroke.  I am on medication to strengthen my bones  and am currently waiting for the resulkts of my latest bone density scan.  I too have nerve and muscle problems.. I have read this is part of the…"
Monday
Teresa Ann Smith replied to Pat Polinski's discussion Older people living with O.I.
"Hi there Nightwriter, I too  am hot all the time and get really bad hot flashes where I am really uncomfortable even in the winter. Yes I think its part of the condition.  I wear summer clothes all year round also!  I was put on HRT…"
Monday
Teresa Ann Smith replied to Pat Polinski's discussion Older people living with O.I.
"Hi Darla,  I hope you are ok.  Just hope I have not upset you in anyway.  Hope to hear from you soon . Teresa"
Monday
Sarah L Wassmuth posted a status
"I clicked on the OI Chat room, but it appears to be a broken link"
Sunday
Sarah L Wassmuth is now a member of OI Foundation
Jul 19
Teresa Ann Smith replied to Pat Polinski's discussion Older people living with O.I.
"Hi Darla,  Its good you dont have any dislocations or muscle problems.   Well I will mention the reclast and forteao when I go to the doctors again. I am waiting for the results of a bone density scan at the moment.  I am on…"
Jul 13

Forum

Older people living with O.I. 61 Replies

Started by Pat Polinski. Last reply by Teresa Ann Smith 5 hours ago.

OI and open heart surgery

Started by Kirstin Csongedi May 7.

Jones Fracture with Type I OI

Started by Ashley Zimmermann May 6.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

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Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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