OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

Groups

 

Latest Activity

Damon posted a blog post

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…See More
Friday
Linda Weir left a comment for Clara Albert
"Hope you are well."
May 30
Linda Weir and Clara Albert are now friends
May 30
Jen commented on Jen's group OI 20-somethings
"It's been a while since I've been on here. Last July I decided to up and move from MA to FL. I decided I just needed a change and the weather has been great for my pain. I'm going in for surgery on my foot in a month and I'm…"
May 28
Janice Torpey replied to Morgan Reid's discussion Dentinogenesis Imperfecta treatments
"Hi Morgan;  I am 64 with type 1 OI.   I have had problems with my teeth my entire life.  After having many root canals, caps, abscesses and extractions,  I am now down to 3 teeth.   Two have had root canal, and one…"
May 22
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Merlin, I am not interested in discussing God with others. God and I have a personal relationship to which I do not share with others. Darla"
May 22
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Merlin, this is Darla and I think you called me Pat. I am 53 years old. Yes it is a good thing to laugh. I try to keep a positive attitude each and every day. There is no other way to go through life.  I have type IV and have a son who is 25…"
May 21
Brian Jones and Amelia O. Hebert are now friends
May 14

Forum

Dentinogenesis Imperfecta treatments 1 Reply

Started by Morgan Reid. Last reply by Janice Torpey May 22.

Older people living with O.I. 69 Replies

Started by Pat Polinski. Last reply by Darla Vogt May 22.

Partner has OI IV or V & trouble exercising 1 Reply

Started by Natalie Lachance. Last reply by Bonnie Oct 25, 2014.

Blog Posts

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…

Continue

Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

 
 
 

© 2015   Created by Erika Carter.   Powered by

Badges  |  Report an Issue  |  Terms of Service