OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

Groups

 

Latest Activity

rahmat hidayat and Brandon Michael Hatch joined OI Foundation
41 minutes ago
That's great!! Good to hear. Well good luck and I hope he takes good care of ya! =) It really sucks that there aren't too many specialists for adults with OI. It's kinda like once you hit 21, you're on your own. lol
47 minutes ago
Thanks Andi I finally found a doctor and he is at a Children's Hospital, most of the workers there think I am still atleast a teenager. I got in with no problem because I was referred to him from an associate of his. He is a wonderful doctor, he l...
50 minutes ago
Jello Wrestling which resulted in a broken ankle..lol, But my mom knew and cheered me on..
1 hour ago
If you never let OI stop you from doing anything & everything then this is the place where you would wanna be. Also there will be group confrence calls so sign up fast!!!
1 hour ago
Andi King joined Becky's group
This group is for you to share stories, advice, knowledge,... pretty much anything about dating and/or relationship experiences you've had / want to have. Please don't be shy, we all want to know because we all want to have great relationships.
1 hour ago
Andi King joined Jen's group
This is a group for people in their 20's and early 30's with OI. Talk about looking for a job, relationships, graduate school and all the great stuff we go through in our 20's.
1 hour ago

Forum

Sheemika Kendrick

Finding an Orthopedic Doctor 6 Replies

Started by Sheemika Kendrick. Last reply by Andi King 47 minutes ago.

JULIE ANNE BEAVIS

ADULTS WITH OI TAKING FOSOMAX 16 Replies

Started by JULIE ANNE BEAVIS. Last reply by Brandon Michael Hatch 4 hours ago.

Becky

Social security questions 4 Replies

Started by Becky. Last reply by jackiey Nov 18.

Blog Posts

jackiey

I am 23 with OI

I am 23 have type 3 OI but my own type 3 the DRs say that I really look more like type 2 of OI but because of the fact I have lived for 23 years they are going to say I have type 3 but my own type 3. I am 25 inches tall. I am also a girl, and recently I have met someone who I really like even love and when I say met someone I mean a man!! lol but am very worried about carrying out the relationship because hes healthy and a average size, and obviously you all know that im not lol. Plus my family… Continue

Posted by jackiey on November 17, 2009 at 4:30pm — 4 Comments

Kimmy's Parents

My Slides



Continue

Posted by Kimmy's Parents on November 8, 2009 at 9:44pm — 2 Comments

Rev. Jeannie Cavender D.D.

collagen type 1 and 3

i just found a bottle of super collagen 1-3 at walgreens and i was surprised at all fast this stuff is working. i dont know if its helping my bones, but i have noticed a major drop in pain in just the first dose. i am amazed i really did not think it would do any thing. but within the first hour my pain droped, and i had energy like you wouldnt believe. i felt like a spring chicken lol i just wonder how long the effects will last Ive been on it now for 3 days and during this time i have not had… Continue

Posted by Rev. Jeannie Cavender D.D. on November 7, 2009 at 3:52am

wendy

Fosamax/Alendronate help!!

Hi everyone

I had my metabolic bone test results last week and they showed im borderline for all my tests and my scan showed my hips are fine but my spine is in the osteopenic range. They have recommended i start on Alendronate/Fosamax immediately and see if this can slow down the bone loss and build me up a bit.
Im just a bit worried about the side effects of the drugs and how they will make me feel.

Can anybody share their experiences with me?

Thank you kindly
Wendy

Posted by wendy on November 4, 2009 at 10:25am — 1 Comment

Chris

Fundraiser for me a Handicap Van!

I've ran out of options, Rehabaltation Services won't help me. The government don't care or anything. I can't even sell the freakin van I have that now and got no use for it! I'm starting a Fundrasier to hopefully one to accumulate enough money to be able to have my own van. ! If you'd like to Donate to this cause via (Paypal) click the button below. Thanks Everyone!

https://www.paypal.com/cgi-bin/webscr?Continue

Posted by Chris on October 28, 2009 at 12:58am

 
 
 

© 2009   Created by Osteogenesis Imperfecta Foundation on Ning.   Create Your Own Social Network

Badges  |  Report an Issue  |  Privacy  |  Terms of Service