OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Kali S replied to Kali S's discussion Parents that have baby's with OI type 1 or 4
"Hello Charlene, I'm sorry to hear about your son I know how hard it is when they break something... We had a nurse come to the house for a couple months to make sure everything was going good, taking temps, checking for breaks, etc. she was…"
12 hours ago
Kathleen McCarthy is now a member of OI Foundation
yesterday
Jennifer Porter replied to Kali S's discussion Parents that have baby's with OI type 1 or 4
"Charlene, we are waiting for a diagnosis but believe type 1. I am looking someone to chat with as well."
Friday
Profile IconJennifer Porter and AUGUTIN AZIAKOU joined OI Foundation
Friday
M. Burrell replied to M. Burrell's discussion Relocating
"Hello, I also have the same issues with doctors being familiar in my area. We've struggled a lot with communication and between doctor-patient confidence. It has gotten to the point of relocation. Just narrowing it down to the best place.…"
Jul 17
M. Burrell posted a status
"Thank you, Laura hope everything is going ok with you and your family."
Jul 10
cami camen left a comment for Rachel
"Hi. Hope you re fine. My daughter is now 11 yrs old.How are you?"
Jul 8
Laura replied to M. Burrell's discussion Relocating
"Oifondation.org"
Jun 29

Forum

Parents that have baby's with OI type 1 or 4 5 Replies

Started by Kali S. Last reply by Kali S 12 hours ago.

Relocating 4 Replies

Started by M. Burrell. Last reply by M. Burrell Jul 17.

Doctors

Started by Laura Jun 28.

Blog Posts

Hoping to gain insight

Hello Everyone, my name is Dakota Roby and I am a senior in high school. I am a nursing assistant and going into the healthcare field. I have already began classes and in my lab we are doing senior projects. For my project, I am doing research of Osteogenesis Imperfecta. I first heard of this disease through a book I read, Handle With Care by Jodi Picoult, and the story was inspiring, as much as it was interesting to read about. I want to learn more about this diesease, anything and…

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Posted by Dakota Lea Roby on February 5, 2016 at 9:49am

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…

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Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

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Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

 
 
 

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