OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

Groups

 

Latest Activity

Nicole Weaver joined Anthony Nelson's group
Aug 15
Nicole Weaver is now a member of OI Foundation
Aug 15
Jaime Hahn is now a member of OI Foundation
Aug 13
Teresa Ann Smith left a comment for Darla Vogt
"Hi Darla, I am pleased you had a good time on Friday night.  MMMmmm The Bahama Mama sounds delicious!  I bet the picture of you all looked lovely.  Your shirt sounds great!  I bet you do get loads of compliments when  you…"
Aug 10
Darla Vogt left a comment for Teresa Ann Smith
"Hi Teresa, Yes I had a good time Friday night.  A bahama mama is a fruity drink with a few rums in it.  Yum. My friend got lots of nice presents.  We took a group picture and of course I was the shortest.  I have a shirt it says…"
Aug 9
Teresa Ann Smith replied to Gursharan's discussion Having children when you have OI yourself
"Hi there,   I have type 1 Oi, My oldest daughters doesnt have OI  My son has type 1 and my youngest daughter has type III .When I saw your question I thought long and hard but OI has been in our family for generations and luckily for…"
Aug 8
Kristen Young is now a member of OI Foundation
Aug 5
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Monica, It's Darla. I just got your message you sent me a long time ago.  I was confused how the forum was designed.  I did not mean to ignore you.  It seems that you are very versed with OI.  So, how old are you? It…"
Aug 2

Forum

Having children when you have OI yourself 50 Replies

Started by Gursharan. Last reply by Teresa Ann Smith Aug 8.

Older people living with O.I. 65 Replies

Started by Pat Polinski. Last reply by Darla Vogt Aug 2.

OI and Agent Orange 20 Replies

Started by Meaghan Steele. Last reply by Darla Vogt Jul 26.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

© 2014   Created by Erika Carter.   Powered by

Badges  |  Report an Issue  |  Terms of Service