OI Foundation

Osteogenesis Imperfecta


To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.



Latest Activity

Melissa Pate is now a member of OI Foundation
Nov 4
Bonnie posted a status
"All these new members but are any of them really OI?"
Nov 3
Profile IconMary Nix, Nabeela Perwez, Mark Jackson Jr. and 5 more joined OI Foundation
Nov 3
jackiey shared a profile on Facebook
Oct 31
jackiey left a comment for Midnight Roller
"You alive??"
Oct 31
Shawn joined Karla Rawls's group

OI vs Child Abuse. Getting the Facts.

This group is for parents being accuse of Child Abuse when the real diagnois is Osteogenesis Imperfecta. We want to be heard. We will NEVER HURT our Babies!!!!!!!!
Oct 14
Sarah Green is now a member of OI Foundation
Oct 13
Profile Iconrajesh kishore shah, lynda riffle and FRANK KWABENA joined OI Foundation
Oct 7


Parents that have baby's with OI type 1 or 4 2 Replies

Started by Kali S. Last reply by Kali S Sep 23.

Any advice 8 Replies

Started by Lisa Greene. Last reply by Kali S Sep 23.

Who's on your team?

Started by Monique M Sep 6.

Blog Posts

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…


Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…


Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm


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