OI Foundation

Osteogenesis Imperfecta

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To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Dakota Lea Roby shared a profile on Facebook
Mar 28
Dakota Lea Roby replied to Dakota Lea Roby's discussion Hoping to gain insight
"Thank you! Email works best...what's your email?"
Mar 24
Dakota Lea Roby and Jennifer are now friends
Mar 24
teresa barber replied to Dakota Lea Roby's discussion Hoping to gain insight
"   well Dakota I'm Teresa - I'm a 48 yr old nurse with the diagnosis of OI - willing to answer questions - holler back.  Send an e mail if you want or you could look me up on Facebook. theres a dog and chicken for my profile…"
Mar 23
teresa barber shared Dakota Lea Roby's discussion on Facebook
Mar 23
teresa barber shared a profile on Facebook
Mar 23
teresa barber and Clara Albert are now friends
Mar 23
HK posted a discussion

Concerts lead to hearing loss..What can I do?

I love concerts. I love live music. I love music in general. I love seeing my favorite bands play in front of me. But the decibels are so high at concerts.  I don't want to lose hearing. I wore some earplugs that reduce decibels but only by 13, and that's not enough. I don't want to lose my hearing (Thanks, OI), but I also don't want to give up one of my favorite activities/hobbies. Any help? See More
Mar 22

Forum

Hoping to gain insight 2 Replies

Started by Dakota Lea Roby. Last reply by Dakota Lea Roby Mar 24.

Looking for parents to chat with 5 Replies

Started by Charlene Evans. Last reply by Charlene Evans Mar 22.

Blog Posts

Hoping to gain insight

Hello Everyone, my name is Dakota Roby and I am a senior in high school. I am a nursing assistant and going into the healthcare field. I have already began classes and in my lab we are doing senior projects. For my project, I am doing research of Osteogenesis Imperfecta. I first heard of this disease through a book I read, Handle With Care by Jodi Picoult, and the story was inspiring, as much as it was interesting to read about. I want to learn more about this diesease, anything and…

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Posted by Dakota Lea Roby on February 5, 2016 at 9:49am

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…

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Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

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Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

 
 
 

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