OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

Groups

 

Latest Activity

Profile IconSerena Brook and Patricia Hamilton joined OI Foundation
Feb 24
Patricia Hamilton posted a status
"any other teenagers in Phoenix/Glendale AZ area.My son is 14 type 3 severe. Wheelchair bound plays video games &Needs a friend like him"
Feb 23
Stephanie sgroi joined Sarah Buchan's group
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OI Type 1

This is a group for everyone with Type 1 OI to discuss anything and everything OI related and non-OI related.
Feb 13
Stephanie sgroi posted a status
"Hello, my name is Stephanie I am 22 years old and I have osteogenesis. I am so thankful I found a place I can connect with others like me!"
Feb 13
Stephanie sgroi is now a member of OI Foundation
Feb 13
Patty Nelson left a comment for Patty Nelson
"Hi I just joined. I have a son with severe OI . He is 29 yrs. old. He cannot sit very long because of hip pain so he does not get out very often. His outlook is incredible! He has such a good outlook and is fun to be around. It is very hard for me…"
Jan 31
Patty Nelson is now a member of OI Foundation
Jan 31
Petra Cantrell shared Pamela's group on Facebook
Jan 29

Forum

Partner has OI IV or V & trouble exercising 1 Reply

Started by Natalie Lachance. Last reply by Bonnie Oct 25, 2014.

Still in disbelief 4 Replies

Started by Justin Wyatt. Last reply by Bonnie Oct 25, 2014.

OI and Agent Orange 22 Replies

Started by Meaghan Martin. Last reply by Darla Vogt Sep 3, 2014.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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