OI Foundation

Osteogenesis Imperfecta


To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.



Latest Activity

Profile Iconrajesh kishore shah, lynda riffle and FRANK KWABENA joined OI Foundation
stella kwale is now a member of OI Foundation
Oct 1
Bonnie left a comment for Latha nair
"sounds like spam to me "
Sep 25
Kali S replied to Kali S's discussion Parents that have baby's with OI type 1 or 4
"Yes I joined I few on Facebook"
Sep 23
Kali S joined Paul Knorr's group
Sep 23
Kali S and Sharon S are now friends
Sep 23
Kali S replied to Lisa Greene's discussion Any advice
"Lisa- my fiancé and I recently went through a very familiar situation, we brought our son to the hospital for a swollen leg and had no idea what was wrong with him but they did X-rays and found out he had a broken leg, very shocked at the…"
Sep 23
Sharon S left a comment for Kali S
"Welcome to the OI community. :)"
Sep 23


Parents that have baby's with OI type 1 or 4 2 Replies

Started by Kali S. Last reply by Kali S Sep 23.

Any advice 8 Replies

Started by Lisa Greene. Last reply by Kali S Sep 23.

Who's on your team?

Started by Monique M Sep 6.

Blog Posts

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…


Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…


Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm


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