OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

Groups

 

Latest Activity

Brandon Baume is now a member of OI Foundation
Tuesday
Bonnie replied to Natalie Lachance's discussion Partner has OI IV or V & trouble exercising
"I use hand weights"
Saturday
Bonnie replied to Justin Wyatt's discussion Still in disbelief
"I can relate to you in some of the things u said. Growing up oi is a bitch but it's how we handle it which can make our experiences worse or better. Welcome to the forum ~ Bonnie"
Saturday
Bonnie posted a status
"Any of you deal with spasms in the area of a break? I hurt my knee really bad and it spazzes and I jump and it hurts alot. suggestions?"
Saturday
Profile IconCourtney Carroll and Melissa Bonato joined OI Foundation
Oct 22
Melissa Bonato posted a status
Oct 22
Melissa Bonato commented on Becky's group Dating and Relatonships for People with OI
"OLÁ, SOU BRASILEIRA, 23 ANOS. TENHO OI TIPO III. ;)"
Oct 22
Melissa Bonato joined Becky's group
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Dating and Relatonships for People with OI

This group is for you to share stories, advice, knowledge,... pretty much anything about dating and/or relationship experiences you've had / want to have. Please don't be shy, we all want to know because we all want to have great relationships.See More
Oct 22

Forum

Partner has OI IV or V & trouble exercising 1 Reply

Started by Natalie Lachance. Last reply by Bonnie on Saturday.

Still in disbelief 4 Replies

Started by Justin Wyatt. Last reply by Bonnie on Saturday.

OI and Agent Orange 22 Replies

Started by Meaghan Martin. Last reply by Darla Vogt Sep 3.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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