OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.

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Latest Activity

Lucy is now a member of OI Foundation
Monday
julie salmons is now a member of OI Foundation
Dec 2
jo kwo is now a member of OI Foundation
Nov 16
Brandon Baume is now a member of OI Foundation
Oct 28
Bonnie replied to Natalie Lachance's discussion Partner has OI IV or V & trouble exercising
"I use hand weights"
Oct 25
Bonnie replied to Justin Wyatt's discussion Still in disbelief
"I can relate to you in some of the things u said. Growing up oi is a bitch but it's how we handle it which can make our experiences worse or better. Welcome to the forum ~ Bonnie"
Oct 25
Bonnie posted a status
"Any of you deal with spasms in the area of a break? I hurt my knee really bad and it spazzes and I jump and it hurts alot. suggestions?"
Oct 25
Profile IconCourtney Carroll and Melissa Bonato joined OI Foundation
Oct 22

Forum

Partner has OI IV or V & trouble exercising 1 Reply

Started by Natalie Lachance. Last reply by Bonnie Oct 25.

Still in disbelief 4 Replies

Started by Justin Wyatt. Last reply by Bonnie Oct 25.

OI and Agent Orange 22 Replies

Started by Meaghan Martin. Last reply by Darla Vogt Sep 3.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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