OI Foundation

Osteogenesis Imperfecta

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To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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OI Type 1

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This is a group for everyone with Type 1 OI to discuss anything and everything OI related and non-OI related.
Thomas Walko joined Sarah Buchan's group 6 hours ago
18 Comments
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Thomas Walko is now a member of OI Foundation 6 hours ago
Welcome Them!
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Re-Defining Disability

Unsatisfied with the dictionary's definition of 'disability' I re-define it in a blog post here: http://perfectlyimperfecta.blogspot.com/2012/01/re-defining-disability.htmlPerfectly Imperfecta has been running since May 2011. I update it every weekday; while I give advice on living life with O.I. on a larger scale I am hoping to encourage everyone to live a life of breaking barriers!Facebook page: …See More
Blog post by Sandy yesterday
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Mary replied to Craig Thom's discussion 'sports and type I'
My 3 year old grandson has OI type 1 along with DI. He was born 8/11/08 with blue sclara. His 1st leg break was Feb 2011, 2nd leg break Apr 2011, 3rd Aug 2011 (femur 4 places) and 4th arm break Nov 2011. Are you still focused on OI?
yesterday
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Mary is now a member of OI Foundation Sunday
Welcome Them!
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Jennifer Grace Crider is now friends with Thomas and Amanda amaro Thursday
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Bridget Henderson and Babu Chandran joined OI Foundation Thursday
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Am having OI, I lives Kerala in India. Is it any Job opportunities especially for OI in US?
Status posted by Babu Chandran Jan 25
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Forum

Craig Thom

sports and type I 22 Replies

Started by Craig Thom. Last reply by Mary yesterday.

Melanie Smith

Type 3/4 - Frequency of breaking increased at age 11 - WHY? 3 Replies

Started by Melanie Smith. Last reply by Tamara Jan 24.

amber mcewan

going for your iv? do you get pain?

Started by amber mcewan Jan 21.

Blog Posts

Sandy

Re-Defining Disability

Unsatisfied with the dictionary's definition of 'disability' I re-define it in a blog post here: http://perfectlyimperfecta.blogspot.com/2012/01/re-defining-disability.html

Perfectly Imperfecta has been running since May 2011. I update it every weekday; while I give advice on living life with O.I. on a larger scale I am hoping to encourage everyone to live a life of breaking…

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Posted by Sandy on January 29, 2012 at 7:44pm

Lacey Pfalz

I'm new here, and I don't know what to do with my life...

I'm thirteen and I've had oi forever. I first broke a bone by jumping off a bed in my grandmas house. This will sound suckish, but I have no one who understands me, because I'm a genetic mutation.
Please help me, somebody


Lacey

Posted by Lacey Pfalz on January 10, 2012 at 6:05pm — 4 Comments

Katrina Buckley

Morphine Pump

I'm a single mom of a 9yr old little boy who has Achondroplasia (his dad has Achondroplasia).  I'm 34 with Type III OI. 

Obviously I've had numerous fractures (500-600), and I was among the first generation of kids to have the telescopic rods procedure.  Because of all the fractures, arthritis, and horrible scoliosis, I suffer from chronic pain.  I have been managing it through a variety of oral pain meds, and in the past epidurals and steroid injections. 

A new pain management…

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Posted by Katrina Buckley on January 1, 2012 at 7:00pm

sharon laura whittier

osteogenesis imperfecta and me

I have lived with O.I for 68 years.  I don't know what type I have, I just know broken bones have been a huge part of my life.  I would be interested in talking with anyone else who has O.I.  As I have never met anyone with it.  Maybe I could help you or you could even help me.

Sharon

Posted by sharon laura whittier on December 30, 2011 at 1:35pm

Sandy

Let's BREAK MORE -

BARRIERS that is.. 

Hi! I'm Sandy and I'm an early 20 something who has OI type 3. I'm a student and I also work.. but mostly I'm getting out of trouble and hanging out with friends.

Aside from all of the regular stuff though I manage a daily blog called Perfectly Imperfecta: Breaking Barriers One Post at a Time. Check it out! Or become a fan on facebook:…

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Posted by Sandy on December 29, 2011 at 3:36pm

 
 
 

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