OI Foundation

Osteogenesis Imperfecta

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To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Mrs Merlin Marie Harris replied to Morgan Reid's discussion Dentinogenesis Imperfecta treatments
"Hello Morgan.  My name is Merlin and I am a lady, 57 years old with O.I. Type III.  I have had treatments for my teeth which consists of dental veneers on my top row of teeth to hide cracks, and the fitting of a partial denture to my…"
3 hours ago
Mrs Merlin Marie Harris replied to Pat Polinski's discussion Older people living with O.I.
"Dear Darla.  Thank you for your reply.  Sorry about the mix up.  I found your attitude on life very inspirational, one in which I should try to imitate, being a not so positive person myself at times. I am a Bible student and I would…"
4 hours ago
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Merlin, this is Darla and I think you called me Pat. I am 53 years old. Yes it is a good thing to laugh. I try to keep a positive attitude each and every day. There is no other way to go through life.  I have type IV and have a son who is 25…"
21 hours ago
Mrs Merlin Marie Harris replied to Pat Polinski's discussion Older people living with O.I.
"Hi Pat, I'm Merlin, from London, United Kingdom, and a newbie also.  I am 57 years of age and have O.I. Type III (probable diagnosis).  I find that over the years it does get harder to get going in the morning.  My baggage…"
yesterday
Brian Jones and Amelia O. Hebert are now friends
May 14
Profile IconHamid Hussain, lou lou, fred wong and 5 more joined OI Foundation
May 11
Profile IconSerena Brook and Patricia Hamilton joined OI Foundation
Feb 24
Patricia Hamilton posted a status
"any other teenagers in Phoenix/Glendale AZ area.My son is 14 type 3 severe. Wheelchair bound plays video games &Needs a friend like him"
Feb 23

Forum

Dentinogenesis Imperfecta treatments 1 Reply

Started by Morgan Reid. Last reply by Mrs Merlin Marie Harris 3 hours ago.

Older people living with O.I. 68 Replies

Started by Pat Polinski. Last reply by Mrs Merlin Marie Harris 4 hours ago.

Partner has OI IV or V & trouble exercising 1 Reply

Started by Natalie Lachance. Last reply by Bonnie Oct 25, 2014.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

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Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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