OI Foundation

Osteogenesis Imperfecta


To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Sussan Gilberto is now a member of OI Foundation
8 hours ago
Heather Nelson joined Michelle Duprey's group

Professionals with OI

Discussion group of adults with OI in the professional world. We clearly face unique challenges and sharing solutions and professional networking is the goal of this group.See More
9 hours ago
Darla Vogt replied to Pat Polinski's discussion Older people living with O.I.
"Hi Grace, my name is Darla and I have type IV OI too and just turned 52.  I also walk on crutches and am 4 foot tall. I do not have hearing loss and I broke my femur in November because I fell down a few stairs.  I am all better now.…"
Grace-Marie Cricket Lynch commented on Rev. Jeannie Cavender D.D.'s group OI in the south
"I'm in East TN, if anyone is in the area.  I am 50 and have Type IV OI. I am planning on going to the INDY conference Aug. 1-3.  I'm active in Little People of America and will be hosting a meet and greet at the conference."
Mar 20
Grace-Marie Cricket Lynch replied to Pat Polinski's discussion Older people living with O.I.
"Aging is a part of life. I don't worry about it too much, it is what it is.  I also have Type IV OI, I turned 50 this year. I walk w/crutches and my knees are my biggest problem (ligaments/muscles floppy).  I have been swimming which…"
Mar 20
Monica T replied to Pat Polinski's discussion Older people living with O.I.
"Hi Darla. One of the things rarely mentioned in the common literature about collagen disorders is that there is a tendency for women to bleed heavy all their lives, and especially near or at menopause, when there is even less good collagen available…"
Mar 20
Profile IconManasi Nikam and Raeann joined OI Foundation
Mar 18
Bonnie posted a status
"well since everyone else posts their biz's i'll post mine: www.thegimpstore.com"
Mar 4


Older people living with O.I. 48 Replies

Started by Pat Polinski. Last reply by Darla Vogt on Friday.

Broken bones, and pinning operations

Started by Jo Jo Mar 2.

Blog Posts

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

OI Hearing loss and vertigo

Does anyone else here have severe hearing loss and vertigo - constant dizziness?  I am 59 years old with mild OI type 3 or 4, and walking, with a progressive hearing loss since I was 13.  In my case, the hearing loss has been diagnosed as similar to cochlear otosclerosis.  I've worn various hearing aids since I was 15, had two stapedectomies, and still take Florical as a treatment. I'm  deaf in the left ear from the last stapedectomy.  When I turned 50, I started to have vertigo.  Now it's…


Posted by Marilee on September 6, 2012 at 12:27pm


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