OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Groups

 

Latest Activity

Dakota Lea Roby posted a discussion

Hoping to gain insight

Hello Everyone, my name is Dakota Roby and I am a senior in high school. I am a nursing assistant and going into the healthcare field. I have already began classes and in my lab we are doing senior projects. For my project, I am doing research of Osteogenesis Imperfecta. I first heard of this disease through a book I read, Handle With Care by Jodi Picoult, and the story was inspiring, as much as it was interesting to read about. I want to learn more about this diesease, anything and everything…See More
Friday
Dakota Lea Roby posted a blog post

Hoping to gain insight

Hello Everyone, my name is Dakota Roby and I am a senior in high school. I am a nursing assistant and going into the healthcare field. I have already began classes and in my lab we are doing senior projects. For my project, I am doing research of Osteogenesis Imperfecta. I first heard of this disease through a book I read, Handle With Care by Jodi Picoult, and the story was inspiring, as much as it was interesting to read about. I want to learn more about this diesease, anything and everything…See More
Friday
Dakota Lea Roby is now a member of OI Foundation
Friday
Isaac Nix is now a member of OI Foundation
Tuesday
M. Burrell is now a member of OI Foundation
Jan 27
Chris posted a status
"What's up everyone? Add my twitter! https://twitter.com/caturner69"
Jan 21
Chris is now friends with Wilma Renae and Timika
Jan 21
Bonnie posted a status
"Does anyone use this site anymore?? All I see is ppl joing with empty profiles and no postings... :( Empty. sad"
Jan 19

Forum

Hoping to gain insight

Started by Dakota Lea Roby on Friday.

Parents that have baby's with OI type 1 or 4 2 Replies

Started by Kali S. Last reply by Kali S Sep 23, 2015.

Any advice 8 Replies

Started by Lisa Greene. Last reply by Kali S Sep 23, 2015.

Blog Posts

Hoping to gain insight

Hello Everyone, my name is Dakota Roby and I am a senior in high school. I am a nursing assistant and going into the healthcare field. I have already began classes and in my lab we are doing senior projects. For my project, I am doing research of Osteogenesis Imperfecta. I first heard of this disease through a book I read, Handle With Care by Jodi Picoult, and the story was inspiring, as much as it was interesting to read about. I want to learn more about this diesease, anything and…

Continue

Posted by Dakota Lea Roby on February 5, 2016 at 9:49am

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…

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Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

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Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

 
 
 

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