OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.
 

Latest Activity

Hi there im 42 and last broke a year ago. I have type 1 and i did have a particularly nasty fall that caused the breaks! Good luck with college! Wendy x
wendy left a comment for Maria19 hours ago
wendy added 2 discussions19 hours ago
wendy left a comment for Ally20 hours ago
wendy left a comment for hayley coulson20 hours ago
Rachel Bradley and Navin Gadidala are now friendsyesterday
Sarah F. Bruno-Jezierski and James are now friendsyesterday
James, Penny Acrey, Lloyd E Dunning Jr and 2 more joined OI Foundationyesterday

Forum

Jake Blas

When was the last time you broke? 20 Replies

Started by Jake Blas. Last reply by wendy 19 hours ago.

wendy

Removal of plates following breaks

Started by wendy 19 hours ago.

wendy

Lack of understanding about OI

Started by wendy 20 hours ago.

Blog Posts

Damita L Bryant

The Sadness

Today is the day that will never be forgoten. As i was in english class i got a text that change my mood. The King of POP has passed from a heart attack. Some might say its foolish to mourn a man i never met. But i could care less what people have to say or even think. Michael Jackson was a great performer. His music will always be here and i am thankful for that.
My mother loved him and know she gets to meet him. Go be with the ANGELS KING OF POP ,may he RIP and may his family be okay and bl
Continue

Posted by Damita L Bryant on June 26, 2009 at 1:48am — 1 Comment

Dee Dee

My birthday is August 4th.

Come check out my birthday wishlist at Walmart.com

https://www.walmart.com/giftregistry/gr_detail.do?registry_id=26771868131

Posted by Dee Dee on June 24, 2009 at 8:01pm

esther elaine rosamond

Hi my son has OI

Hi i am new here, my son has OI, he is 7 he has the mild type i beleive, they have never really told us what type he has my husband and i have taken him to all kinds of genectics dr;s and if anyone knows what that is like you know it's a pain not just for us but for our son as well. we just found out last year he now has scoliosis of the spine. Along with his OI he also has EHLERS DANLOS SYNDROME.He has had several broken bones and fractures, we thought all along that he just had the EDS, but be… Continue

Posted by esther elaine rosamond on June 24, 2009 at 2:11pm — 5 Comments

Sara

She walks!

Our daughter is just turning 20 months old an has decided to get up and walk. She is coming up to 4 months break free (that's a record!) Prior to that she has had 13 breaks but so far no open fractures, thank goodness. She had taken some steps before, quite regularly for a while there but hadn't in the last few weeks, so it came as quite a surprise. She has been using a walker supplied by her Physio team (novita) for the last 7 weeks or so and that has given her great opportunity to exercise, it… Continue

Posted by Sara on June 24, 2009 at 9:24am — 2 Comments

Damita L Bryant

Hello to all

hi um i don't know where to start. i have only founnd this site recently. I have OI and i am in a moderized wheelchair. i live with my siter and her two beautful kids. i go to college and i watch family kids to make money. i have a boyfriend we have been together for 2 years. um i don't have much to say right now still in shock. i have been looking for people that understands how i feel and what its like. and i have found this site and i can't wait to meet more people.

this is what i know. m
Continue

Posted by Damita L Bryant on June 24, 2009 at 5:10am — 2 Comments

 
 
 

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