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OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Marilee Marilee replied to the discussion Does anyone else suffer from an incredibly bad memory? Im only 32. 30 minutes ago
Renee Carcella Renee Carcella replied to the discussion Pamidronate Therapy...Too late? 36 minutes ago
Dee Dee Dee Dee started a discussion called Does the rain cause you more pain? 1 hour ago
Dee Dee Dee Dee replied to the discussion OI Conference 2008! 2 hours ago
Abby Abby left a comment for Craig Andrews 3 hours ago
Abby Abby left a comment for Jo 4 hours ago
Sharon & Chip Sharon & Chip joined the group Moms of School Age 4 hours ago
Jo Jo left a comment for Abby 5 hours ago

Forum

Clothes Shopping For OI Adults
13 Replies

HI All, I am a 39 year old woman type 3-4 OI and I am having a difficult time finding adult looking clothes and shoes in my size. I am in the midst of having a friend make me pants but where can I... Continue

Tagged: clothes, shoes, oi, adult, &

Started by Susie Wilson. Last reply by Olivia's Mom 10 minutes ago.

Does anyone else suffer from an incredibly bad memory? Im only 32.
4 Replies

Hi all, my names Nikkii and I have the most mild form of OI. Im 32, have had approx 80 broken bones in my life, stand 4ft 11" tall (or short lol), have 2 kids (neither have it thank god!) and work ... Continue

Started by Nyx28. Last reply by Marilee 30 minutes ago.

Pamidronate Therapy...Too late?
10 Replies

Hello Adam's Mom, I read your reply on the hearing loss issue...but i am more interested in your comments about the Pam being too late to make a difference. I am currently going through endocrine e... Continue

Started by Renee Carcella. Last reply by Renee Carcella 36 minutes ago.

Blog Posts

I feel a little "left out."

Though, I am not included in the photos or anywhere else, I am Patrick's dad. I'm just pretending to be miffed. My wife does a wonderful job of keeping up with the research, news and social aspects of our son's condition. I have left almost all of the internet info exchanges up to her. She's so good at it. I just wanted to say "Hi" because I will sometimes show up in the blogs and comments. Didn't want anyone suspecting my wife of a dual personality or my 6 yr old son of an unusual vocabulary. I… Continue

Posted by Cindy Sharrock on May 12th, 2008 at 2:15am — No Comments (Add)

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Continue

Posted by Nanzel on May 11th, 2008 at 5:50pm — No Comments (Add)

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Spanish graphics from www.MyOnda.com

Posted by Nanzel on May 11th, 2008 at 5:04pm — No Comments (Add)

[ Draft ]


Spanish graphics from www.MyOnda.com

Happy Mothers Day for every mother in the world.

Posted by Nanzel on May 11th, 2008 at 4:29pm — No Comments (Add)

Pensamiento de Gandhi

PENSAMIENTO DE GANDHI Ayúdame a decir la verdad delante de los fuertes y a no decir mentiras para ganarme el aplauso de los débiles. Si me das fortuna, no me quites la razón. Si me das éxito, no me quites la humildad. Si me das humildad, no me quites la dignidad. Ayúdame siempre a ver la otra cara de la medalla, no me dejes inculpar de traición a los demás por no pensar igual que yo. Enséñame a querer a la gente como a mí mismo y a no juzgarme como a los demás. No me dejes caer en el orgul… Continue

Posted by Nanzel on May 10th, 2008 at 11:43pm — No Comments (Add)

 
 

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