OI Foundation

Osteogenesis Imperfecta

Welcome!

To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Latest Activity

Goro Yoshida shared a profile on Facebook
Sep 14
Darla Vogt replied to Meaghan Martin's discussion OI and Agent Orange
"Hi, nice to hear from you. It sounds like you do have type I.  That is good.  My fear is getting into a car accident. You should see me when my husband drives...lol.  I am sorry to hear of your accident.  Thankfully bones heal. I…"
Sep 3
Meaghan Martin replied to Meaghan Martin's discussion OI and Agent Orange
"Sorry it has taken me so long to get back to you. Honestly I don't know what type I have. We were never given the option to test for that. I think I am type I because I seem to be fairly able to not break bones usually, however...  My…"
Aug 28
Nicole Weaver joined Anthony Nelson's group
Aug 15
Nicole Weaver is now a member of OI Foundation
Aug 15
Jaime Hahn is now a member of OI Foundation
Aug 13
Teresa Ann Smith left a comment for Darla Vogt
"Hi Darla, I am pleased you had a good time on Friday night.  MMMmmm The Bahama Mama sounds delicious!  I bet the picture of you all looked lovely.  Your shirt sounds great!  I bet you do get loads of compliments when  you…"
Aug 10
Darla Vogt left a comment for Teresa Ann Smith
"Hi Teresa, Yes I had a good time Friday night.  A bahama mama is a fruity drink with a few rums in it.  Yum. My friend got lots of nice presents.  We took a group picture and of course I was the shortest.  I have a shirt it says…"
Aug 9

Forum

OI and Agent Orange 22 Replies

Started by Meaghan Martin. Last reply by Darla Vogt Sep 3.

Having children when you have OI yourself 50 Replies

Started by Gursharan. Last reply by Teresa Ann Smith Aug 8.

Older people living with O.I. 65 Replies

Started by Pat Polinski. Last reply by Darla Vogt Aug 2.

Blog Posts

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…

Continue

Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm

Posted by Nanzel on September 23, 2012 at 9:54pm

 
 
 

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