OI Foundation

Osteogenesis Imperfecta

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To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

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Groups

 

Latest Activity

Karla Robinson Husband & Spouse
22 minutes ago
23 minutes ago
I made this club for us OI's that like to have fun!! I enjoy life, love to shop, go to festivals and partayyyy, not live like an old lady lol. This group is for like minded OI folks!! If you're fun and love to live life then come on in!!!
32 minutes ago
Hello Karen Sands We too, here in Shreveport, La are going threw the same thang with child abuse about fractures. I saw this and couldn't help but reply to this because it seemed like it was us. My granddaughter was born @ 26wks weight 13oz. stay...
1 hour ago
Hey Becky I thought about doing that but I did one better... You see I get ridiculously drunk and had my friend that was sober carry me and give me the feeling of what it was like to walk drunk... Well all I can say is that I'm glad I'm in a chair...
1 hour ago
Got drunk just 2 days before my birthday, broke both legs and had to stay in bed for about a week. Yes, lesson learned. I wanted to see what it was like to be drunk, so I did and suffered the consequences. Yep, never do that again!
17 hours ago
If you never let OI stop you from doing anything & everything then this is the place where you would wanna be. Also there will be group confrence calls so sign up fast!!!
17 hours ago

Forum

Andrea Arostegui

New to OI and OIF and child abuse accusations 6 Replies

Started by Andrea Arostegui. Last reply by Karla Rawls 1 hour ago.

Amelia

Life's Issues 14 Replies

Started by Amelia. Last reply by MK 21 hours ago.

Becky

Social security questions 3 Replies

Started by Becky. Last reply by MK 21 hours ago.

Blog Posts

Rev. Jeannie Cavender D.D.

collagen type 1 and 3

i just found a bottle of super collagen 1-3 at walgreens and i was surprised at all fast this stuff is working. i dont know if its helping my bones, but i have noticed a major drop in pain in just the first dose. i am amazed i really did not think it would do any thing. but within the first hour my pain droped, and i had energy like you wouldnt believe. i felt like a spring chicken lol i just wonder how long the effects will last Ive been on it now for 3 days and during this time i have not had… Continue

Posted by Rev. Jeannie Cavender D.D. on November 7, 2009 at 3:52am

wendy

Fosamax/Alendronate help!!

Hi everyone

I had my metabolic bone test results last week and they showed im borderline for all my tests and my scan showed my hips are fine but my spine is in the osteopenic range. They have recommended i start on Alendronate/Fosamax immediately and see if this can slow down the bone loss and build me up a bit.
Im just a bit worried about the side effects of the drugs and how they will make me feel.

Can anybody share their experiences with me?

Thank you kindly
Wendy

Posted by wendy on November 4, 2009 at 10:25am

Chris

Fundraiser for me a Handicap Van!

I've ran out of options, Rehabaltation Services won't help me. The government don't care or anything. I can't even sell the freakin van I have that now and got no use for it! I'm starting a Fundrasier to hopefully one to accumulate enough money to be able to have my own van. ! If you'd like to Donate to this cause via (Paypal) click the button below. Thanks Everyone!

https://www.paypal.com/cgi-bin/webscr?Continue

Posted by Chris on October 28, 2009 at 12:58am

Tina Lawless

Going to a new school

This is my first blog. I have 3 girls who have OI type I. My middle child has had more breaks and surgeries than the other kids and is the one I worry about the most. She seems to be either very fragile, or just clumsier. :o)
Starting a new school can be scary. Cacie is in Middle School this year. We were feeling comfortable with the elementary school staff, and now have to start all over again with the Middle School staff. Middle School is much harder. She has so many teachers to train. It is O… Continue

Posted by Tina Lawless on October 27, 2009 at 10:31pm

Kierstin

Living with OI type IV and looking for other people with OI to chat with

Hi. I am a 25 year old mother, wife, friend, daughter, etc. I have OI type IV. I inherited this disease from my Mother, who inherited it from hers. I am not quite sure how far back in the generations it goes, though I do know there are multiple people in my extended family on that side effected by the gene. It is a dominant gene. One of my sisters also has the disease. I am 4 ft 9 inches tall. The shortest living adult with the disease in my family. I broke both my femurs in utero. I am lucky in… Continue

Posted by Kierstin on October 27, 2009 at 2:10am — 1 Comment

 
 
 

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