OI Foundation

Osteogenesis Imperfecta


To the Osteogenesis Imperfecta Foundation's online social network. Information posted by members on this site is not verified by the OI Foundation. If you would like more information about OI, or living with OI, please contact the Foundation directly at bonelink@oif.org.

Please use the Report an Issue link at the bottom of the page to report any problems or concerns with the site.



Latest Activity

Iqbal Munir left a comment for Amanda
"Hi Amanda "
Jul 22
Madi replied to Lacey's discussion Forteo
"Thanks for sharing your experience with Forteo.  I have just had it prescribed to help me with some stress fractures.  The Reclast helped up to a point but the Forteo sounds like it will do a better job. My own doctor took it and has grand…"
Jul 20
Madi posted a discussion


I am a writer.  I write for myself and others to understand and reflect on what this great adventure of a life is all about. I would like to invite you to read my scrawls on my personal blog.  Tell me what you think and perhaps you can also write about your impressions on your life. As a person with OI I find it is easier to understand if I write.  Maybe you feel the same way. Enjoy!  Try this link: InappropriatelyOptimisticSee More
Jul 19
Madi commented on Lacey Pfalz's blog post I'm new here, and I don't know what to do with my life...
"Hey girl! You are special and unique as every one.  You understand the world better because you know life is not always perfect.  You know suffering but let me tell you everyone suffers! Be compassionate for those who don't understand…"
Jul 18
Madi commented on Marilee's blog post OI Hearing loss and vertigo
"I have type IVb with some hearing loss with age (63yo). My dizziness has started maybe ten years ago on and off again.  More recently it has gone on for the longest (one month).  I read that in normal people with age vertigo can occur…"
Jul 18
Amanda posted a status
"Hey everyone!! :)"
Jul 18
Robert posted a status
"Not getting this :("
Jul 17
Brenda Smith / my son Frankie posted a status
"Wondering if I actually have a fracture guess I need to educate myself again first. My hip really hurts &I been tolerating it. silly me."
Jul 17


Forteo 5 Replies

Started by Lacey. Last reply by Madi Jul 20.


Started by Madi Jul 19.

Dentinogenesis Imperfecta treatments 1 Reply

Started by Morgan Reid. Last reply by Janice Torpey May 22.

Blog Posts

The Return

Good god has it been that long since I been gone? 6yrs lol Well I see not much has changed here but as for me well gotten older lol. Joined this site when I was 26 now 31 and been having my share of physical battles and overcame them all. Would go into detail about what Ive been thru the last 6yrs but dont wanna bore anyone with a novel size blog lol so just to give those a piece of mind I updated my pic and changed background just to show that Im still around and came back. Hope everyone is…


Posted by Damon on July 3, 2015 at 3:19am

Unbreakable spirit

Hello, I'm Micahia or Kya as my friends call me. I have OI type I. I am currently struggling with chronic pain from a fall about 7 years ago. I have degenerative disk disease, spondylolisthesis, scoliosis, levoscoliosis, sciatica and a pinched nerve all from the same event...(minus the scoliosis) made worse from a couple similar falls over the years. Me and my pain management dr are working things out with suboxone and gabapentin, they are working pretty well but i certianly hate the…


Posted by Micahia on June 18, 2014 at 11:52pm — 1 Comment

Posted by Nanzel on September 23, 2012 at 10:08pm

Posted by Nanzel on September 23, 2012 at 10:00pm

Posted by Nanzel on September 23, 2012 at 9:58pm


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